VIDEO: Funding critical for rare childhood diseases

By Rhiannon Bruni
May 9, 2014

The Roger Hedgecock Show on U-T San Diego TV recently interviewed Hudson Freeze, Ph.D., professor and director in our Human Genetics Program, and Morgan Fischer, an exceptional young girl with a rare soft-bones disease called hypophosphatasia (HPP).

Stressing the importance of federally funded research for rare childhood diseases, the interview builds on Freeze’s recent op-ed in the U-T San Diego and shares the inspirational story of how Morgan, who was unable to walk before treatment, is now able to play baseball with other children her age.

Join the conversation about research funding by using the hash tag #ResearchFunding on Facebook and Twitter.

Watch the whole interview here.

Read more about Morgan’s story here.

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Rhiannon Bruni

Rhiannon was an SBP Communications staff member.


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